My 17 year old child started seeing Dr. Caro 6 months ago for ongoing and hard-to-diagnose issues they have had since childhood. Our primary care doctor suggested Dr. Caro as someone who "thinks outside the box", willing to research and investigate. I have found that to be true. Our first appointment was 2 hours and Dr. Caro ordered so many tests that my child almost passed out from the 24 vials taken at one time. Then there were 7 stool samples. Then we were referred to a neurologist for large nerve testing and muscle testing. Dr. Caro did small nerve testing also. While all this testing was hard, it was obvious that Dr. Caro was searching for new information that could help identify what was wrong. I liked the thoroughness of his approach and was grateful that we got so much time.
However, problems started happening; getting appointments rescheduled without our knowledge (and I only find out after I call them to talk about something), follow up lab orders that request the exact same tests that were negative a month ago (with no physical difference in that month, so why are we testing again?), being told over and over that the staff had to ask Dr. Caro before scheduling a telehealth visit and then never getting back to me, so I would call multiple times and still not have an answer; ordering labs without telling me and then getting frustrated at me for not getting the labs done.
Dr. Caro's diagnoses were multiple for my child, one of which is polyarthritis, which honestly he seemed to diagnose by simply touching my child and asking if it hurt. Probably within those 24 vials of tests is more proof of this, but he didn't really tell us how it was diagnosed. He gave us 3 treatment options, one of which is his experimental research at City of Hope which was mentioned by Frances in another review (THANK YOU FRANCES FOR YOUR REVIEW, IT HELPED ME A LOT), which feels sketchy to me because the "blood cleaning" research implies there is something to be removed from my child's blood when the diagnosis is low immunoglobulin. The normal treatment for low IG is IV replacement therapy, which is also one the choices for treatment he gave us. So the City of Hope thing literally sounds like he just wants more volunteer guinea pigs and that bothers me a lot.
Dr. Caro also said to go to a gastroenterologist because none of the suggested treatments will help with gastro issues but then followed up by sending a lab order for all of the same stool samples that were completed 6 weeks ago, all of which were negative. The number of labs continuously ordered is frustrating - they cost us money and time (and pain for my child). When I have argued about them with the staff, they ask Dr. Caro and then he says they are not necessary. So why order them if they are not necessary? Is it possible for doctors to get kickbacks from blood draw companies? If it was, then I would think that's what's going on.
We are currently in decision-making mode, which will include getting a second opinion. I am extremely thankful to Dr. Caro for digging in and finding a lot more information about my child's health - no other doctor has come close to his level of research and thought. However, the other things (office issues, lab tests, City of Hope) make it very frustrating. Therefore, 3 stars. read more