I am extremely upset!!! I have repeatedly told this facility that my husband eloped from a hospital about 7 years ago after he was admitted for another seizure and I asked that they watch him. He got hit by a car, broke his tibia and fibula, had a subdural hematoma and had 2 surgeries and months of physical therapy, all of which I had to take care of him. And this was because no one listened to me.
At a family meeting on Friday, I asked why my husband was sent to a doctor's appointment without an aide. The Unit Manager was new and didn't know that John required an aide to go with him. I asked what policy was put in place to prevent it from happening again, and I was told that he would no longer have an aid. I told them that was unacceptable...that he could not go without an aid and I also told them that on Monday (today), I had a huge meeting at the college where I work that I was running and there would be 10 other people at the meeting including the Bursar, the Director of Financial Aid, two Deans, an Associate Dean, the Registrar and more. I also told them that I would be meeting with my boss all morning to go over documentation I had put together all last week while I had bronchitis, and my dog had to be put to sleep so I am under extreme pressure.
I left it that he could not go to an appointment unattended, and today, they sent him by himself anyway. I had to leave the office and run to the appointment, wait for the doctor to see my husband and then waited another 40 minutes for the ambulance to pick him up. The doctor's office was closed for lunch. I knocked on the door and begged them to watch him and then I called the ambulance company and asked them to go inside to get my husband. When I got back to the office, I didn't have time to make the revisions my boss asked me to make and I made copies for everyone but didn't have time to put everything together correctly. I was so embarrassed.
What makes me so mad is that I told them about my meetings today twice on Friday. They asked me to call them on Monday after speaking with another facility that I looked at to move John to, and I told them again that Monday was going to be very busy and I repeated how important the meetings I had on Monday were, and I didn't think I would have time to call them. I said I would call Tuesday after my meeting.
I'm looking at new facilities because of their mistakes, and the biggest one is causing me issues with new facilities because another new supervisor who didn't know my husband called the police because he threatened to throw a one ounce plastic pill cup at his roommate. He and his roommate had been arguing for months and although I told them about it, it never bothered anyone because they knew that my husband or his roommate would do anything...they are like little kids arguing over stupid things. They documented everything but they never documented the times I asked my husband was left on the toilet for 1/2 an hour with no one coming to help him, or when an aid left him naked with a diaper around his ankles because he didn't want her to take off his shoes. He called me at 1:30 am asking for me to call and get him help because he was freezing. Then in anger, she "accidentally" hit him on the knee with his walker. I called and spoke to a supervisor and she checked him and told me that she didn't see any marks, but there is nothing mentioned in his chart about that either.
I have been taking care of my husband 20 years and I already lost one job and had to sell my home because I took too much time off from work to take care of John's issues. I am almost 60 years old working full-time at a busy job, I have a home and a yard to take care of and I cant' believe they can be so heartless.
How heartless can you be to not understand my situation? My husband has been going to doctors appointments with aides for 5 years and I was never told that he couldn't have an aide. I go to every one of John's doctor's appointments but I can't stay the whole time nor can I get there early to wait for the ambulance to get there or wait for them to get there to pick him up. I have one hour for lunch and it sometimes takes 2 or 3 hours.
Now I am told that I have to go to John's appointments with him from now on. He has an appointment with the cardiologist next Monday because he might need a pacemaker and I'm going to have to cancel it. I just called and told the administrator how upset I am and explained over and over that I told them sending him out without an aide was unacceptable, and a nurse that was in her office said they were doing what they had to do to take care of John and I said leaving him alone in a parking lot is not taking care of him, and if he had to miss his cardiologist appointment, that wasn't taking care of him either and when I said I was going to call the state, the administrator said that she doesn't take threats, and hung up. read more