My Sister spent 3 days at Wedum.
I am physically disabled. I…read morewas her Health Care Rep. and ONLY person to ever talk about end of life with my sister, EVER!
I had ONE chance to visit my sister while she was at Wedum- she was still being chemically restrained with Thorazine past being able to eat or drink or awake for over 10 days! Upon arrival, the Social worker, Hospice and other staff bombarded me immediately the moment I showed up! I had purposely not called, to avoid being harassed, I wanted to be with my sister! They turned my visit into a business meeting, the moment they made me leave my sister's room, apparently to sign one form, and to yap constantly at me, repeatedly, telling me what my feelings were, when I again asked for detailed written list of meds and told them to reduce or remove the chemical restraint! After 30 minutes of this, I was too exhausted to stay and had to go home. I never saw my sister alive again.
I had repeatedly told Hospice Coordinator, half a dozen Nurses, Doctors and Social workers; from her first intake at Abbott forward, that chemical restraint was unacceptable and my sister did not want that! They did so without consent! Lying saying the Thorazine was to " relax her and make her a bit sleepy" , "they give it to people with hiccups"! I went home and did a lot of research! Thorazine use in Cancer patients; except for one specific type of cancer where it is an actual treatment; is specifically used as a chemical restraint, and is inappropriate when it makes patents comatose, unable to drink or eat, along with showing immediate specific adverse reaction symptoms (see: Drugs.com, Medline and others) as it immediately did with my sister who was dehydrated and starved to death!
https://www.firsthealth.org/app/files/public/e3cf0ed7-0822-4c26-a019-a238095ee21f/For%20Physicians/chemical-restraint-education.pdf
My sister had appropriate indicators for a managed short term use at the hospital, but not 10 days of drug induced dehydration & starvation!
Once transferred to Wedum, I repeatedly ASKED everyone I spoke to about her care to reduce or remove the Thorazine, as we agreed before she was transferred to Wedum! I also requested a complete list of all medications and told them they had to contact me before changes or additions(AGAIN)!
A day later, I called her Hospice care coordinator (witnessed by my daughter& her husband on speaker):
My younger sister was visiting and called me from Wedum, having been given a very different story (lies) about medications and care. She had asked what meds our sister was on and why they couldn't give her IV fluids: The outright lies began! Answer: "She's just on "anti seizure" medication (Valium). And no fluids because they would have to stick a needle in her..." - not true - she had a pic line and rectal cath!
On to the call: I explained to the coordinator why I was calling . This time I demanded they stop the Thorazine and compensate with Valium, and opiates, which I had approved at Abbott. I got an argument! More telling me what I was feeling until it got to the point she said it was "Xxxx's wishes", I said; " that's not true!", I was the only person who had any idea of my sister's wishes, which I clearly stated at our first meeting at which my Daughter was present", and told the Coord. that my daughter was present now and listening on speaker, I asked if she would like to speak with her (daughter), her response was silence. I stated clearly, that my feelings were none of her business and have absolutely nothing to do with managing my sister's care, that this was a business conversation! Then not so surprise, surprise - I get a call from Wedum that my sister is dead 8 hours later - exactly the time it takes to die from total dehydration and starvation- not the cancer!.
The week before transfer to Wedum, and a day before the total doping to oblivion with Thorazine, my sister was AWARE, aphasic, confused and , frustrated, angry, lashed out and about; But she was not in pain, eating, drinking, walking and had regular moments of lucidity. We were told she had months not days or a week, before the Thorazine coma!
Warning to all who has a loved one at end of Life! Put your Instructions for care in Writing, signed by their care coordinator and witnessed and Record all phone calls!