While visiting in Orange. My 9 year old special needs son had a prolong focal seizure. Took him by car to the golden triangle er (Bc I could get him there fast than calling 911) Dr Sammy Yu was on duty that night. He was telling me how neglectful I was as a parent because I didn't call 911. His seizure wasnt stopping. ( he has focal seizures, not grand mal.- there's a huge difference) the decision was made to intubate my son to protect his air way and to breath for him because his oxygen levels weren't improving.
After intubating, they did a CT of the head and a X-ray of his chest. After seeing the CT of the head. Dr Yu came and said " he has serious brain damage, and he will never be able to come off the vent."
Back story on that: my child had a stroke before he was born and he has hydrocephalus. But he does really well and doctors can't explain how we got so lucky. Which I tried to explain to him, but it fell on deaf ears.
Anyone with a special needs child knows that child better than anyone else.
We ended up having to fly him to Texas Children's PICU. When we arrived at Texas Children's. Golden Triangle ER placed a call to CPS and said word for word what Dr Yu had said to me.. "delay in care for not calling 911 and bring him myself" "neglecting my child, my child will never be able to bring on himself" " not being "emotionally" enough.
When CPS was reading me the reports, it was everything Dr Yu had said to me personally.
My child was having a seizure, a machine is breathing for him about to fly him. meanwhile I have a Doctor screaming at me about how I neglected him!
We were able to extubate him within 14 hours from arriving to Texas Children's- and he returned to baseline. During that day someone from golden triangle called me to get a status update I told them I do not give permission to have any info. I told them do not ever call to do any kind of update on my child. I'm at the nursing station a mins later and I overhear my sons nurse giving a current report about my sons condition! Which is a big HIPPA violation- on both nurses part!
After a few days after being released from the hospital I placed a call to Golden Triangle- I needed this to be looked at.
The lady that answered the phone is the Charge Nurse and knew what had occurred. I told her the problems with Dr Yu, the false CPS claim, the breaking of HIPPA.
She said she would move this up and do some investigating and she would get back to me. That was over a month ago and I still haven't heard anything yet. read more