I first saw Dr. Namazie 16 years ago due to very severe nerve pain going down the left side of my face. Because it felt "localized" in my cheek and there had been something that felt like a lump there, I believed it was a cyst and I went to Dr. Namazie to remove it.
He was at first very kind and supportive, offering to do it that day, and I was overjoyed because I was in agony at the time. However, he didn't find a cyst and instead found what he first claimed was a lipoma, but later went back on saying it was scar tissue.
I continued to have severe facial pain and had to rely on my parents at the time because I felt barely functional. Dr. Namazie claimed the nerves would heal themselves and it would just be a little slow, but it didn't relent.
Dr. Namazie communicated with my parents, but he was clearly getting sick of me and stated he thought it was just my anxiety (violating HIPAA, mind you). He ordered an ultrasound of my cheek, but when I went to the radiology/imaging center, they stated an ultrasound would not find a mass there and sent me home, letting me know they'd get in touch with him.
He ended up insisting I needed an ultrasound and had me make another appointment. When I got there, the same thing happened, so they got on the phone with him and he strong-armed them into giving me one, with the radiologist shaking her head throughout the whole thing. It was so humiliating and degrading.
That pain continued for the last 16 years, with clinicians and medical professionals writing me off every step of the way.
I went back to Dr. Namazie a while later, not because I really wanted to. I went to my primary care about bad pressure I was having in my ears, and since he had been the one who originally referred me to Dr. Namazie, he sent me back.
As soon as he came in the room, I could tell he didn't want me there. He was quick to prescribe me steroids, but when I told him I didn't have good reactions to steroids in the past, he gave me the most obvious exasperated expression. I could take a hint. I tried to remain friendly, took the prescription, and left.
And lo and behold, 16 years later, what's the cause? Two big ol' honkin' cysts, one behind each ear and extending under my jaw. The left one obviously much larger than the right. The pain (and ear pressure) was the result of the cysts pushing on my facial nerves this whole goddamn time.
The cysts are currently still draining. Well, singular cyst I should say. The right one has fully drained and healed over. The left still has a bit to go. But I've been feeling nerves fire up back in my face and gain motion in areas that have been paralyzed for years.
I can't say how happy I am that something that has caused me so much agony for so long is finally going away, but there's a lot of feelings associated with it. Dr. Namazie is far from the only clinician who disregarded me, and frankly, I haven't even thought of him or even thought of his name up until now.
For some reason though, in the process of all of this, his name popped up back in my head, and I can't stop thinking how if he simply got me the correct imaging and had taken my seriously, he would have been able to identify what was wrong and fix things. He could have saved me from 16 years of severe agony trying to live a normal life with a chronic pain condition that people didn't take me seriously for, a seed which he had planted.
Dr. Namazie had not insisted on the ultrasound because he was attempting to actually find anything. It was the opposite, he was trying to get some sort of imaging on file so he could cover his ass and get me out of his hair.
Dr. Namazie committed medical neglect all those years ago and left me to suffer for 16 years. For what reason exactly I can't say, ultimately he's the only one who can say. But for anyone who goes into him and feels as though they are being dismissed and written off, please know you're not alone., read more